FOLKS Helpline (UK)
0870 8470707
FOLKS
3 Stone Buildings (Gnd Floor)
Lincoln's Inn
London
WC2A 3XL
United Kingdom
Email: info@friendsoflks.com
Regd Charity No. 1059499
FOLKSWe are a registered charity, based in the UK, for children with Landau Kleffner Syndrome, or closely related disorders, their families, and interested professionals.
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Copyright © January 2006
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FOLKS was established following seven years of hard work and dedication by its founder member, Vicki Horsewell. Vicki established the Landau Kleffner UK Parent Support Group with the assistance of the UK national charity Contact a Family, which seeks to support families of children with rare conditions by putting them in touch with other similarly affected families. Thereafter it became clear that the number of families of children with LKS or related conditions in the UK had risen to mean that a national group centred around these children’s needs was possible. A group of concerned parents and professionals, who had been involved in the support group, then formally asked the Charity Commission to register FOLKS as a national charity for children with LKS. The Parent Support Group was then registered as a charity in its own right under the name FOLKS in November 1996. A Committee made up of Parents with children who have been diagnosed with LKS runs the Charity. All services of the committee are offered voluntarily. The vast majority of the Charity’s income derives from donations and sponsorship. If you would like to help, either contact us or send a donation to FOLKS. Contact details can be found at the top left of each page.
Objects of the Charity
FOLKS was set up with the following primary aims:
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The relief of persons affected by Landau Kleffner Syndrome (“LKS”) and related disorders
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To advance the education of the medical profession and the general public on LKS and its implications for the family
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To promote research into LKS, to publish the useful results thereof, and to support organisations providing research into LKS
To achieve these aims FOLKS offers, a help-line, an information booklet available both online and in hard copy, newsletters and by holding events such as FOLKS days. LKS is a very rare condition and as such is understood by only a small minority of the medical profession, which is why FOLKS has such an important role to play.