FOLKS
3 Stone Buildings (Gnd Floor)
Lincoln's Inn
London
WC2A 3XL
United Kingdom
Email: info@friendsoflks.com
Regd Charity No. 1059499
Welcome
to Friends of Landau Kleffner Syndrome!We are a UK registered charity, for children with Landau Kleffner Syndrome (or closely related disorders), their families, and interested professionals.
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To make a donation in support of FOLKS, using your credit or debit card through PayPal, just click on the 'donate' button opposite. In the text box beneath 'Price' enter the amount you wish to donate, and follow the on-screen instructions. Thank you! |
Copyright © January 2006
About this Website
The FOLKS website provides information relating to many aspects of Landau Kleffner Syndrome. This includes medical considerations such as causes, diagnosis, treatment and therapy. Information concerning support for affected families, as well as advice and guidance relating to the education of children with LKS, are provided. The site also describes FOLKS and its activities. Follow the links on the left of this page to learn more.
!! What's New !! - !! Natali Knibbs Takes Over as FOLKS Secretary !!
Hi all,
Firstly, as a parent of a LKS sufferer and a FOLKS member since 2000, I would like to thank Richard for all his hard work and the effort he (and the other committee members) have put into FOLKS. Without all their hard work, dedication and enthusiasm over the years, I doubt that FOLKS would be what it is today.
I wish Richard all the best for the future!
As mentioned, I first become a member of FOLKS in 2000 when my son Matthew was diagnosed with LKS. At that time there was not much information available about the condition and when I was presented with a photocopied paragraph from my son’s neurologist to explain LKS, I did some research online and came across the FOLKS website. The information, help and support that we as a family received from FOLKS was remarkable and saw us through many hard years to come. Thankfully, Matthew has fully recovered and is now a happy well-adjusted 14-year-old (well…. as adjusted as a teenager can be!!!!).
The experience has not only seen Matthew coming out of the condition successfully, but it has also led me onto a new career path as a Nutritional Therapist and I am now enjoying working for myself and being in a position to help others.
Having taken over the role of secretary from Richard, I look forward to being able to put something back into FOLKS and being able to offer help and support to other families that are affected by this condition.
There are some exciting developments happening with Great Ormond Street Hospital (GOSH), which will help the study and research of LKS as well as improving the information available to families. We will update you of these in the near future.
I hope that 2010 brings you all hope and success.
Natali Knibbs
!! What's New !! - !! FOLKS News November 2008 !!
The latest issue of FOLKS News, our regular newsletter, is now available here.
FOLKS News
FOLKS News is our regular newsletter - you can download the latest publication, or obtain a newsletter from the archives.
Previous News Items
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Richard Budnyj steps down as FOLKS secretary
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www.infantile-spasms.org is a "one stop shop" for information & advice on Infantile Spasms (also known as West Syndrome). It provides advice to both families and professionals on the condition itself, as well as treatment, medications & research.
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Visit the SpeechDisorder website to find lots of valuable information about Speech Therapy.
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The Everyclick search engine is a new way to search the internet and raise money for your favourite charity at the same time.
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Discover Magazine in the United States recently ran an excellent article on LKS.
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An evening of Music & Art in support of FOLKS was held on Thursday 13th September 2007.
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In line with requirements of the charity commission for charities with income greater than £10,000 a charity must submit full audited accounts. The FOLKS section of our website now includes an Annual Charity Commission Return page, where our accounts, trustee report and auditors reports are available for public viewing.
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John Conlon supported FOLKS by running the 2007 London Marathon. Read more about his story on our Fundraising Pages
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Amy Alsop ran the 2007 Bath Half Marathon in Support of FOLKS
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The FOLKS Parents' Day was held at the Marriott Leicester Hotel - Saturday 23rd September 2006.
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An evening of Music & Art in support of FOLKS was held on Thursday 23rd November.
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2006 saw several brave and successful efforts by FOLKS members fundraising for the Charity.
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The new LKS Information Booklet, produced by Great Ormond Street Hospital, is now available here.
Contact Details
Our contact details may be found at the top left of each page.
Note:
The majority of the technical content of this site is extracted from information compiled by the Neurodisability team at Great Ormond Street Hospital and is protected by copyright of the GOSH Trust. FOLKS has permission to publish this information for the benefit of parents and others involved in the care and education of Children with Landau Kleffner Syndrome.