Useful Contacts

There are various sources of both practical and emotional support for parents of children with LKS, and a list of relevant organisations is given below.

FOLKS (Friends of Landau Kleffner Syndrome)
3 Stone Buildings (Ground Floor), Lincoln’s Inn, London WC2A 3XL
Tel: 0870 847 0707
Website: www.friendsoflks.com
Email: info@friendsoflks.com

KIDS (Range of services provided for children with disabilities including home based learning, respite care, holiday play schemes and independent educational advisory service)
80 Wayn Flete Square, London W10 6UD
Tel: 020 8969 2817

MENCAP (support group and providers of services for people with learning disabilities)
123 Golden Lane, London EC1Y 0RT
Tel: 020 7454 0454 Fax: 020 7696 5540
Website: www.mencap.org.uk
Email: information@mencap.org.uk

AFASIC (UK charity representing children and young adults with communication impairments working for their inclusion in society and supporting parents and carers)
2nd Floor, 50-52 Great Sutton St, London EC1V 0DJ
Helpline 0845 355 5577 Fax 020 7251 2834
Website: www.afasic.org.uk
Email: info@afasic.org.uk

Contact-a-Family
209-211 City Road, London EC1V 1JN
Helpline: 0808 808 3555
Website: www.cafamily.org.uk
Email info@cafamily.org.uk

Epilepsy Action
New Anstey House, Gate Way Drive, Leeds LS19 7XY
Helpline 0808 8005050 Fax 0113 391 0300
Website: www.epilepsy.org.uk
Email epilepsy@epilespy.org.uk

The National Autistic Society (NAS)
393 City Road, London EC1V 1NE
Tel: 020 7833 2299 Fax: 020 7833 9666
Website: www.nas.org.uk
Email: nas@nas.org.uk

Dyspraxia Foundation
8 West Alley, Hitchin, Herts SG5 1EG
Helpline 01462 454 986 Fax 01462 455 052
Website: www.dyspraxiafoundation.org.uk
Email: dyspraxia@dyspraxiafoundation.org.uk

Hyperactive Children’s Support Group
71 Whyke Lane, Chichester PO19 2LD
Tel: 01903 725 182 Fax : 01903 734 726
Website: www.hacsg.org.uk
Email : hyperactive@hacsg.org.uk

Parent Network (offers courses on parenting skills)
Room 2, Winchester House, Kennington Park,
11 Cranmer Road, London SW9 6EJ
Tel 020 7735 1214 (parent enquiry) Tel 020 7735 4596 (admin)
Fax 020 7735 4692

Skill (National Bureau for Students with Disability)
Provides information, advice and publications regarding post 16 education, training and employment for people with disability
Chapter House, 18-20 Crucifix Lane, London SE1 3JW
Information service Tel: 0800 328 5050 Text : 0800 068 2422
Website: www.skill.org.uk
Email : info@skill.org.uk

Independent Panel for Special Education Advice (IPSEA)
Provides advice and information to parents whose children have special educational needs. Professional advice for parents appealing to SEN tribunal
6 Carlow Mews, Woodbridge, Suffolk 1P12 1EA
Helpline: 0800 0184 016 Fax: 01394 380 518
Website: www.ipsea.org.uk
Email: ipsea.info@intamail.com

Department of Education and Employment (DfEE) Publications Centre
(for copies of the Code of Practice and other DfEE publications)
Tel 0845 602 2260

Advisory Centre for Education (ACE) Ltd
1b Aberdeen Studios, 22 Highbury Grove, London, N5 2DQ
Helpline: 0808 800 5793 Fax: 020 7354 9069
Website: www.ace-ed.org.uk

Makaton Vocabulary
The Makaton Vocabulary Development Project
31 Firwood Drive, Camberly, Surrey, GU15 3QD
Tel 01276 61390
Website: www.makaton.org
Email: mvdp@makaton.org

The Paget-Gorman Society
2 Dowlands Bungalows, Dowlands Lane, Smallfield, Surrey, RH6 9SD
Tel 0134 284 2308
Website: www.pgss.org

The Royal College of Speech and Language Therapists
2 White Hart Yard, London SE1 1NX
Tel: 020 7378 1200
Website: www.rcslt.org
Email: info@rcslt.org