Joining FOLKS

If you do not have access to email, you can download the membership form (in PDF format) below, and post it to the address at the top left of this page.

Membership Form (PDF)

Please do not send cash through the post.

Datasheet

The datasheet is designed to help us help you. It is up to you how much information you wish to give us. The more information we have the easier it is for us to understand the needs of different families and children. The information you give us is subject to the strict UK Data Protection Acts and may not be used for any purpose other than that for which we are registered. The data are treated in complete confidence. You may, if you wish, give us permission to link you with other affected families. Please complete the datasheet below (in Word format) and email it to info@friendsoflks.com.

Datasheet (Word)

If you do not have access to email, you can download the datasheet (in PDF format) below, and post it to the address at the top left of this page.

Datasheet (PDF)

Files in PDF format require Adobe Acrobat Reader to view them. To download, or upgrade to, the latest version of this free software, please visit the Adobe Website.

NOTE:

FOLKS is registered under the UK Data Protection Act - Reg. No. X3934029. Any information supplied on these forms will be kept in the strictest confidence and used only for registered purposes being the pursuit of FOLKS' objects (being the relief of persons affected by LKS and related disorders; to advance the education of the medical profession and the general public on the subject of LKS and its implications for the family; and to promote research into LKS, to publish the results thereof, and to support organisations providing research into LKS), the provision of consultancy and advisory services, the undertaking of research and statistical analysis, administration and fundraising.