Research

LKS is hard to research as the condition is rare and any centre sees relatively few children. In addition, the fluctuating nature of the disease process and seizure activity means it is hard to interpret observations. Despite this, there is a tremendous interest in this group of children, as understanding their condition would shed new light on many areas of epilepsy, language and behaviour.

There is a special interest in LKS at Great Ormond Street Hospital, and there are active plans for research into the condition.